{"id":6777,"date":"2012-04-06T09:48:17","date_gmt":"2012-04-06T09:48:17","guid":{"rendered":"http:\/\/www.global-briefing.org\/?p=6777"},"modified":"2012-04-20T17:10:40","modified_gmt":"2012-04-20T17:10:40","slug":"we-need-to-talk-about-death","status":"publish","type":"post","link":"https:\/\/www.global-briefing.org\/2012\/04\/we-need-to-talk-about-death\/","title":{"rendered":"We need to talk about death"},"content":{"rendered":"

Advances in medical technology and the rise in secularity are increasing our anxieties about dying. But a new approach to end-of-life care, driven by medical practitioners and their patients, is being successfully rolled out across New Zealand, enabling people to discuss this taboo subject and plan their future care.<\/strong><\/span><\/p>\n

<\/span><\/strong><\/p>\n

A new initiative being introduced nation\u00adwide is giving New Zealanders the oppor\u00adtunity to discuss their biggest fears – death and dying. The scheme, known as Advance Care Planning (ACP), offers people the opportunity to list preferences for their end-of-life care while they are still able to articulate their wishes. It can cover every\u00adthing from the straightforward – delineat\u00ading a person’s faith or belief system – to the more complex – for example, whether or when they would like life-prolonging medical interventions and what constitutes an unacceptable quality of life.<\/span> <\/span><\/p>\n

ACP is only two years old in New Zea\u00adland, but is already being hailed a success. “Its implementation is quite advanced and quite wide in its geographical scope. It’s been able to be picked up to this degree because of the size of the population (4.4 million) and because of New Zealand’s integrated health networks,” explains Pro\u00adfessor Rod MacLeod, director of palliative care at Auckland’s North Shore Hospice.<\/span> <\/span><\/p>\n

People need to talk about death, says MacLeod. Last year, he and his colleagues conducted a survey into public perceptions of death and dying and of hospice and pal\u00adliative care. The results: 70 percent of re\u00adspondents said they get anxious or uncom\u00adfortable when they think about a loved one dying, and 35 percent said they get anxious or uncomfortable when they think about their own death.<\/span> <\/span><\/p>\n

MacLeod has some personal observations on why ACP is being widely embraced. “Talking about death used to be the clergy’s job, but now we’ve medicalised death and we’re medicalising the approach to the end of life,” he says. “That’s partly because we’re increasingly secular – and also be\u00adcause we expect medicine to have answers to questions we do not have the answers to.”<\/span> <\/span><\/p>\n

Leigh Manson is facilitator for the Nation\u00adal Advance Care Planning Cooperative. She believes one of the reasons the initiative is working so well is because it’s being driven by clinicians and the general population, not the government. New Zealand has been able to benchmark best practice from other countries, which, she adds, “highlighted the importance of training the health care work\u00adforce, increasing public awareness around end-of-life planning – and lifting the taboo”.<\/span> <\/span><\/p>\n

Already there’s a well-defined core of groups working on ACP. A pilot training pro\u00adgramme that teaches health care professionals how to introduce and facilitate conversations about the end of life with patients is currently under way in Auckland. Participants come from around the country and it is hoped that 170 people will be trained by the end of May. Once fully implemented, ACP will be offered at GP clinics and hospitals throughout New Zealand, and regarded as a standardised part of health care management.<\/span> <\/span><\/p>\n

Manson explains that ACP involves the patient and their family, as well as their health care professional, and is based on a person’s value systems and beliefs, their understanding of their current and likely future health, and the treatment options available. Even before formal plans are re\u00adcorded, there should be a process of discus\u00adsion and shared decision-making, she says.<\/span> <\/span><\/p>\n

Manson and her colleague, Dr Barry Snow, head of adult medicine at Auckland Hospital, have been key players in the introduction of ACP. Snow says it’s partly driven by ethical imperatives, but also by a sense that “we’ve got so many treatment possibilities that you can overuse them when the patient is dying”.<\/span> <\/span><\/p>\n

Cost has a lot to do with it. A report in the New Zealand Medical Journal <\/em>noted that people are likely to spend at least some of their last year of life in hospital. Deci\u00adsions about the appropriate use of high-cost health services towards the end of life can be extremely challenging, the report’s au\u00adthors say. “These decisions are resource-allocation decisions as well as clinical decisions, and should be based on clinical factors, cost utilities and patient, family and society’s expectations.”<\/span> <\/span><\/p>\n

Another factor that’s aided the country’s wide acceptance of ACP is the influence of the Maori and Pacific Island population. Talking about death while still being able to articulate one’s needs is part of their culture of developing relationships. To illustrate that approach in a rural context, there are the ef\u00adforts of the tribally based Maori health care organisation Te Korowai Hauora o Hau\u00adraki <\/em>(The Cloak of Wellness for Hauraki) – a health care provider serving the Thames- Coromandel-Hauraki region, which lies on the North Island. Chief executive Hugh Kin\u00adinmonth explains the organisation is midway through a three-year pilot scheme aimed at providing end-of-life care to Maori in their homes surrounded by their whanau (extend\u00aded family). “The goal is for every patient to be free of pain and discomfort; to not die in isolation and ideally to be at home,” he says.<\/span> <\/span><\/p>\n

To cover the wide area that Te Korowai <\/em>encompasses, there is a service team com\u00adprising two registered nurses with pallia\u00adtive care experience, a social worker and a cultural advisor. In addition, a team of 130 home-based support workers is on hand, operating in concert with GPs, district health board palliative care teams, occupa\u00adtional therapists and district nurses.<\/span> <\/span><\/p>\n

Te Korowai<\/em>‘s efforts may be as simple as connecting water to the home of a terminally ill patient so he or she can can die at home with family, as they wished, rather than in hos\u00adpital (for which the bed cost – at a minimum NZD700 a day – would be much higher).<\/span> <\/span><\/p>\n

“To date, we have only had four of our 32 patients die in hospital,” says Kinin\u00admonth – a New Zealand-born Pakeha (Eu\u00adropean New Zealander). Although the pilot is aimed specifically at Maori, there is a lot the non-indigenous population can learn from it, he believes. “As a Pakeha, I’d like to die like that.”<\/span> <\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

Advances in medical technology and the rise in secularity are increasing our anxieties about dying. But a new approach to end-of-life care, driven by medical practitioners and their patients, is being successfully rolled out across New Zealand, enabling people to discuss this taboo subject and plan their future care. A new initiative being introduced nation\u00adwide […]<\/p>\n","protected":false},"author":10673,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[123,117,41],"tags":[],"_links":{"self":[{"href":"https:\/\/www.global-briefing.org\/wp-json\/wp\/v2\/posts\/6777"}],"collection":[{"href":"https:\/\/www.global-briefing.org\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.global-briefing.org\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.global-briefing.org\/wp-json\/wp\/v2\/users\/10673"}],"replies":[{"embeddable":true,"href":"https:\/\/www.global-briefing.org\/wp-json\/wp\/v2\/comments?post=6777"}],"version-history":[{"count":4,"href":"https:\/\/www.global-briefing.org\/wp-json\/wp\/v2\/posts\/6777\/revisions"}],"predecessor-version":[{"id":7309,"href":"https:\/\/www.global-briefing.org\/wp-json\/wp\/v2\/posts\/6777\/revisions\/7309"}],"wp:attachment":[{"href":"https:\/\/www.global-briefing.org\/wp-json\/wp\/v2\/media?parent=6777"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.global-briefing.org\/wp-json\/wp\/v2\/categories?post=6777"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.global-briefing.org\/wp-json\/wp\/v2\/tags?post=6777"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}